Sunday, March 29, 2009

Light infection


During mum's absence, Paul was happy at home with his caregivers Suzy and Jean-Paul.

Téta cooked a lot and Paul's weight is very much unchanged.

He had friends visits (Alexandre, Hadrien, Jamil, Francis, Rima) and a maths tutorship.

An NHS physio also visited for some exercise but it is mostly Suzy who is making sure Paul does his stretching and gets some massage with oil (offered to mum by Clara for Mothers' Day ... as always thank you Clara) and ice cubes.

His leg is expected to be painful for six weeks after surgery, mostly due to the flap which is a procedure to wrap a muscle from his calf around the prosthesis, in order to diminish the risk of infection.

He has to put a splint when walking during this period because he must not try to extend his leg by himself while his extended calf muscle slowly adapts to its normally extended position as a new resting position.

On the other hand (no pun intended), in order to get his bones to adapt to the prosthesis, he is asked to put as much weight as he can on his (ex) bad leg when walking with crutches.

On Friday, as he had a low 38s temperature, he was taken to Chelsea Westminster who found a light infection at the exit of the picc line (common with picc lines). This is dealt with IV antibiotics given twice a day.

Yesterday evening, Michel took Paul, Suzy and Philippe to Chelsea Westminster Hospital for the evening antibiotics injection. Paul really wanted to return to his bed and was worried the hospital would keep him. So, while waiting for the doctor's visit for his decision on staying or leaving, Paul ordered Philippe and Suzy to put their coats on, while he waited on his wheelchair with his anorak and hat on, in order to show the doc that he really absolutely had no intention of staying. But his fever remained stubbornly at 38 and he was not enthralled to learn he had to stay for the night in order for his temperature to be monitored.

This infection might change the plans for tomorrow's chemo but we'll see. Tomorrow, appointment at 9:30 am with Maria, Paul's paediatrician oncologist.

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